Arthritis symptoms, diagnosis and cureHealth and Disease information

MY STORY: Living with AutoImmune Disease – RA (Rheumatoid Arthritis) – Yulanda Sabrina [HD]

hello world my name is Yulanda I’m 29 and I live in England Surrey, leafy Surrey I’ve never done anything like this before this is my first youtube video it’s probably taken me two years to pluck up the courage to actually do this so yeah here goes forgive me if the lighting is bad it’s been a really weird day to day it was raining now it’s cloudy it was sunny a minute ago it’s been a bit weird so I hope that the Lighting’s okay and you can see me okay I’m going to make this short and sweet I don’t want it to be a long drawn-out video I’m hoping to do other videos you know spin-off videos from this so if there’s anything that I go over that you’d like me to maybe go into more detail about or you want to ask me a question about please comment and leave me you know your questions even if you just want to come and say hi or you know tell me your story then let’s do that let’s make this a little community because I feel like living with autoimmune diseases can be or is a really scary thing and sometimes you feel like you’re all alone and you’re the only person in the world going through it clearly you know you’re not there are other people out there though experiencing the exact same thing that you are my autoimmune disease is rheumatoid arthritis I have endometriosis as well which I was diagnosed with two weeks ago which I’ll make another video about and I have Sjogren’s and syndrome which is an eye condition but it’s kind of a secondary disease to the rheumatoid arthritis so I know a lot of you will know that with autoimmune diseases yes you have a particular autoimmune disease but you also probably are experiencing other horrible conditions and diseases that go along with that particular autoimmune disease and that you have if that makes sense so my Sjogren’s syndrome which is extreme dry eyes my eyes are mostly all the time was probably not but not today actually all the time red and bloodshot I sleep with my eyes open that’s a secondary disease to my rheumatoid arthritis it’s caused by inflammation of the eye, Rheumatoid Arthritis is an inflammatory disease I guess I should go into a little bit about what rheumatoid arthritis is I heard that they’re kind of trying to change the name to rheumatoid disease because arthritis this is just one of the symptoms that we experience or that I experience so there are lots and lots of different types of arthritis rheumatoid being one meaning that I have a dodgy immune system basically it’s malfunctioning so when I get a virus or cold or when anybody gets the virus or cold your body will do what it’s supposed to do send down anti-bodies to you know grab the virus and kind of break it down and get rid of it well my body and anyone with rheumatoid arthritis our body over reacts to the slightest thing so our body’s constantly under attack by its self you know my immune system is attacking my body so anywhere where there’s you know constant movements you know like your joints your body will attack so your finger you have the two bones you have cartilage that wraps around the end of the bones I’m not a doctor so if I get this wrong please correct me but I think it’s cartilage that helps the bones you know glide off each other smoothly then you have a sack of fluid it’s called the synovium filled with fluid and oil which helps you lubricate the joints and then the outer case of the joint is wrapped with your tendons I think that’s how it is my body’s atacking the synovium so my joints will become inflamed and very painful tender swollen and you know you know it’s all joints in my body so it’s painful and it’s really not a nice thing to be going through at all that’s basically what it is rheumatoid arthritis also attacks your organs it’s not just your joint so you know your heart your lungs you liver the brain your eyes is an extremely serious disease and I feel like there’s really not enough awareness about the disease so if I can do this video and just you know educate one person then I’m happy so yeah that’s the basics of it really and if I go back to the beginning of how it started with me my symptoms were painful stiff hands and wrists in the mornings when I awake it started in one hand and graduate to the other hand one foot then it graduated to the other foot my toes and my ankles both knees were agonizing now I’m experiencing pain and stiffness in my neck and my shoulders sometimes my hips if I’m really fatigued my eyes as I said before and my jaw yeah it can be really horrendous sometimes especially when I have a flare up the flare-ups can last anywhere between you know two days to a week when I was diagnosed the doctors first thought it was carpal tunnel syndrome I wasn’t convinced I’m the type of person that runs to the Internet goes on google searches my symptoms and I’m basically diagnoses myself and then I take what I found to the doctor for them to follow it up so doctors never ever know what I’ve got or they just brush it off as something else and in my gut I knew that it was something serious so the doctor sent me to the consultant rheumatologist who lo and behold diagnosed me with early active rheumatoid arthritis they put me straight away on really heavy drugs some of the drugs are used in small doses for cancer patients methotrexate hydroxychloroquine and folic acid the methotrexate I had to increase every couple of weeks that started making me feel nauseous blured vision headaches I hated it and so I went back and told them about my symptoms and they lowered the dose I had steroid injections they were absolutely horrendous so painful the injections themselves was so painful but they did ease the symptoms for you know a good maybe four weeks and then the symptoms would come back as I said I’m trying to pack everything into this video that I can I’m trying to talk as fast as I can my mom she’s an advocate of holistic healthy alternative medicines so she wasn’t having any of it she was like you know you’re 27 you’re so young you’re basically bedridden because the fatigue was crazy sometimes I didn’t even want to get out bed the pain was crazy and and you know one minute I’m fit and health and the next minute I felt like I was half dying she dragged me literally to a very amazing holistic doctor called dr.

Ferguson I’ll put his link in the description box for you to check him out he was a very sickly child growing up he went through hell and back um you know with his health and that’s what inspired him to help others and to find alternative ways of treating things like autoimmune diseases arthritis things like that lupus he does what is called a live blood test so he pricks your finger and puts your blood under a microscope and shows you live on the screen what your blood looks like when you’re at the doctors and they take your blood and they send it off your blood is dead by the time anyone is looking at it under the microscope a live blood test you can see is what it is you can see your blood you know real time see what it’s doing my blood was in his words he has five hundred odd patients in his words the worst blood he’s ever seen my white blood cells were all clumped together normal blood you have you know a clear screen and then you’ve got these white you know cells blood cells or whatever they are bouncing off each other there’s movement in the blood and and the cells bounce off each other mine were all stuck together some were black I said what those black things he said I have parasite to my blood I had parasites in my blood I had metal in my blood sugar in my blood all sorts of different horrendous rubbish in my blood I said how did I get this way I feel like I’ve been so healthy and tried to do my best when it comes to my health he said literally you know people with autoimmune disease were born this way but something has triggered the dodgy you know gene or DNA in me to now bring this disease out if that makes any sense so I’ve always had it but it’s just been in hiding so there’s something that I’ve triggered it whether it be stress or just eating badly I don’t know something triggered it and yeah so he put me on the strictest food regime that I’ve ever had to endure in my life two months no alcohol no sugar no salt no oil and for the first couple of days had to juice just straight juicing then I had to have like herbal teas every day and spirulina no fruit I was eating you know beans pulses vegetables no white rice no bread fish no meat I’m a pescetarian anyway so I I didn’t eat meat anyway but it was just so strict and that was over Christmas on my birthday and New Year it was hard as hell but I did it went back to him for follow-up two months after I literally felt like I was cured while I was I was cured I had no symptoms I was back to normal I dropped loads of weight I felt amazing on top of the world so it just goes to show that auto immune diseases can be fought with food you know we are what we eat we hear it all the time I was totally acidic you know just my body wasn’t liking anything I was eating basically I probably had food allergies I didn’t even know about and all of this brought on this disease then life happened I started eating badly again not badly but I would have the odd you know bit of cake or bread or anything sugary um and that would set me off so I started noticing that anything bad for me would start to cause my inflammation and make me flare up again so I thought what’s really annoying is that you know the health system does not tell you about using food as medicine and it doesn’t eliminating certain foods you know can basically cure you of your diseases why they don’t tell you any of that I have no idea it’s clearly you know I want to make money off the drugs but they don’t give you any alternatives they just you know put you on these hardcore drugs and then that’s it I didn’t feel that that was right for me I then as I said started to flare up again because of eating badly and I started to notice a pattern of whenever I would drink alcohol or eat sugar the next day I would literally be half bedridden sore achy it was horrendous I then decided that I was going to exercise eat right and try and manage this myself without any of the drugs that the rheumatoligist wanted to put me on, probably about a year later after my diagnosis I felt like I had it a little bit under control I would have the odd flare-up well as I said that was when I ate badly I wasn’t on any drugs I threw a whole massive box of drugs in the bin I was feeling okay and I was feeling like it’s something that I could cope with being diagnosed with rheumatoid arthritis you know it does hit you like a ton of bricks but I always knew that I had enough willpower and enough strength to not let it consume me you know it’s something that affects me every single minute of the day but I don’t let it consume me I stopped owning it as well I stopped saying you know my rheumatoid arthritis you know I have the disease but it does not have me I love that phrase so they say it’s not curable but I believe it is manageable with your diet and other kind of healthy medicines such as tumeric I recently learned that tumeric is an amazing anti-inflammatory and tumeric tablets I ordered some off the net started taking them there are other you know healthy ways of bringing down your information if any of you have any amazing healthy natural remedies that can help you no inflammation put them down below tell me about them tell me about your experience tell me what works for you tell me what hasn’t worked for you I’m doing this now totally drug-free I’m trying to eat right I’m now starting a new juice regime which I’m going to maybe do another video on that’s really helping me it’s totally changed my life I do suffer now from the odd flare-up mainly affects the joints in my hands and my wrists sometimes I’ll experience sore feet and neck I’ll wake up sometimes I can’t tell my neck to the side is horrendous and my eyes as well will be bloodshot and red and that’s how I know my flare-ups coming on I’ll wake up on my eyes will be red and my rheumatologist has given me eyedrops for my eye condition I think I’m going to do another video my eye condition because that’s a whole new subject but then in terms of the arthritis it’s there I’m dealing with it I’m coping with it and I just want to share my story with you guys and if anyone wants to ask me anything please do I want to be here to have this discussion you know you’re not alone it can happen to a two-year-old all the way up to you know an elderly person it can affect anybody at any time I just want to try and be here to offer support to anyone that needs it spread awareness about the disease because you can look at someone with RA and not even know that they have RA it’s not an obvious disease the symptoms aren’t obvious you know my fiance and my mom and my sisters people that are closest to me know what I go through nobody else really knows you know the days when I don’t want to get out of bed I’m fatigued I can’t even make myself something to eat cause I’m so tired I know my fiance is there to support me and I feel so blessed and fortunate that I have the support system around me to enable me to have those days when I’ll just want to stay in my bed yeah this is me I have rheumatoid arthritis but it doesn’t have me and thank you for watching I appreciate you and like subscribe share do all of that stuff if you know anyone who is suffering from an autoimmune disease you know share this video with them maybe it’ll help them and and as I said we can have back and forth dialogue with each other and go from there so I’m going to go now and thank you for watching and yeah oh I totally forgot to show you guys this is my paperwork from the last two years these are my clinical letters and my appointment letters look look at this look how thick that is it’s crazy I’ve had MRIs I’ve had all sorts of scans ultrasounds and I’ve had x-rays I’ve had everything in and out of hospital and out of three hospitals in in my local area so yeah I know a lot of you can relate to this these were my wrist splint that I had to wear for the first in a couple of months when I was really in agony with my hands and my wrists you know I was wearing these to work and out and about no not cool but had to be done I was in so much pain my knees as well I had to wear this knee bandadge if you can call it that I would wear this to work out as well I actually have two of these I can’t find the other one but yeah all sorts of different things I’ve had to to use at one point I couldn’t open a jar I couldn’t open a bottle and found it hard to eat with a knife and fork I found it hard to sleep because the joints were just so inflamed and so painful I feel like I have a high pain threshold anyway but then I feel like I’m coping now a bit better I’m going to check my notes to see if I’ve forgotten anything the most awful thing about having rheumatoid arthritis or an autoimmune disease is that you can develop secondary diseases so for instance I started to get acid reflux and indigestion so then I had to take drugs to combat that so it’s like there was a drug for every symptom and then you would get side effects from that drug and then it’s like a layering effect so you’re just on this cycle of pills and it’s awful it is not really where you want to be I developed sinus infections and a one point I was severely vitamin D deficient and I was taking drugs for my deficiency I’m still on a maintenance dose for that although my juicing and eating vegetables you know up in my intake of veg really does help with my deficiency getting enough sunlight exercise and all that sort of stuff and I’m now at a point where I just don’t want to take any any drugs because every drug I take I then experience a side effect then I’ll have to take a drug for that side effects and it’s just horrible cycle that feels never-ending so I’m proud to say that I’m not on anything right now and all that I’m on is I try and juice at least twice a week and I take em tumeric tablets when I am bad and I do have a flare-up I will take her ibufrofen and its really good it takes some information straight away apart from that I’m not on anything I feel I’m clean try and keep a clean diet as much as possible I’ve looked into the Paleo diet I’ve looked into being vegan and pescetarian I don’t eat meat so if feel like the transition to vegan might be fairly easy maybe I don’t know I do love my fish but I’ve tried to cut out dairy and we don’t drink milk at all I drink almond milk and I don’t eat eggs anymore I love eggs but I don’t eat them anymore and there’s so much information out there on the internet and about foods that cause inflammation in the body so it makes sense to stay away from those foods you know and yeah that’s about it so with all that said now I’m actually going to go and thank you so much for watching please subscribe share like all of that good stuff and follow me on instagram if you like and like I said hit me up if you have any questions or want me to go into more detail about anything that I’ve discussed thank you for watching bye honey bunnies

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